How did you sleep last night?
Peripheral neuropathy is a strange set of circumstances. It come in lots of flavors and has many names, sorta like Baskin-Robins ice cream. For many folks, PN, as we who know it so well, fondly nickname it, usually hits us in the feet first. Our feet tingle, burn, feel hot or icy cold. Some feet don’t feel at all, but are numb. You would think numbness does not hurt, but you would be so very wrong. Nerves are strange. They stop sending the right messages to the brain and our feet scream at us that they hurt.
Sore feet affect you every day. And every night. Some PN sufferers have feet that feel so hot and sensitive, they cannot stand to have even a blanket touch them, so they rig up elaborate tents over their feet to keep them untouched by anything. Others’ feet get so hot at night, they must sit up and put their feet on a cold tile floor or in ice water. Ouch.
My feet hate being exposed to the air at all. You might know I would be the unusual one. My parents always said I was different. Guess they are right.
I live in New Orleans where 100 degrees in the summer just slows us down a bit and maybe we drink more iced tea. One would think my feet would be happy ones. One would be so very wrong. I walk around all day in 40ยบ below zero wool socks and fleece lined sheepskin slippers. At night I wear those same socks. And cover my feet (only) with an electric blanket with several blankets on top of the electric one. I have thought of filling a comforter up with hard dried beans and covering my feet with that to keep the air out. Strange? Yup! My feet feel as if they have been frost bitten, but touch them and they feel warm. Well, I guess so with those wool socks and slippers. But me they feel as if I am doing a slow climb up Mt Rainier. I have done that, so I have a good comparison. Or ice fishing…same thing.
PN: Strange disease. no cure. But those of us who have it are inventive at the very least.
Sleep?
June 29, 2009 by pondlady
Posted in Stories | Tagged cold feet, hot feet, sleeping with peripheral neuropathy, tingling feet | 1 Comment
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Ooooooh how I relate to all of this. People think I’m crazy when I tell them my symptoms. I am in the process of finding a doctor who will take me seriously. It is a constant pain. I dread bedtime every night for reasons you just described. I kick and toss and turn and flail trying to find a place to put my feet that doesn’t hurt. It doesn’t exist! I finally will take something to make me fall asleep.